Rare Disease ERN Clinical Care Coordinator

Job Description

(0.5 WTE, Maternity Leave Locum Cover, Specific Purpose Contract)

The Rare Disease ERN Care Coordinator will have a central role in the coordination of multidisciplinary rare disease care pathways, patient and family rare disease support, advocacy and education. In collaboration with the MDT and relevant stakeholders, the post holder will contribute to the delivery of a quality and effective rare disease service and identify service quality improvements through a patient partnership approach.

The Care Coordinator will collaborate and work closely with the National Care Coordinator at the National Rare Diseases Office on (but not limited to) national data reporting requirements and standards and continuous quality improvement.

Full particulars in respect of the above post are available on from the Medical HR Department at 01 6343699.

To apply for this position candidates should email full Curriculum Vitae with a cover letter nominating three named referees (one of which should be current). These details should be forwarded to the Medical HR Department, Royal Victoria Eye and Ear Hospital, Adelaide Road, Dublin 2 or via email fiona.brennan@rveeh.ie to arrive not later than Midday on Friday 20th March 2026.

Upon receipt of your application, you will receive an acknowledgment from the Medical HR Department. If you do not receive this acknowledgement, please contact Medical HR to ensure your application has been received.